Coming Soon: Interaction with newly-diagnosed

Course outline and dates

• Month XXth: Unlocks first segment of educational materials
  

  • Introduction and explanation of the first video assignment
  • Psychological profile of individuals with AL, CML, CLL, and MPN
    o Stages of accepting the diagnosis
    o Impact of the disease on different life areas
    o What we can expect as helpers
    o How to assess the support system
    o Brief intervention for anxiety 
  • Use and power of speech
    o Use of words
    o Concretization
    o Conciseness
  • A conversation with an expert 
• Month XXth: Sending first video assignment
  Video task - prepare on the assigned topic and send for analysis
  

  • First video assignment theme: "Patient advocate - Why am I here?”
  • Written analysis of the video assignment
• Month XXth: Unlocks second segment of educational material
  

  • Principles of successful communication
    o Technique of anticipated questions
    o Main points
    o Illustrativeness in speech
  • Burnout Prevention
    o What is burnout and the difference between stress, anxiety, and burnout syndrome
    o Burnout prevention (short relaxation exercise)
    o What to do when burnout occurs
    o „Secondary traumatization”- what it is and what to do when it occurs 
  • Listening skills – empathy and compassion (audio book)
  • Stress management - breathing techniques
  • Interaction with families including children of a newly diagnosed patient
    
  • A conversation with an expert
  • Bonus material
    o Brochure: How to talk to newly diagnosed patients
    What is useful
    What to avoid 
    o Practical protocol for patient advocates: crisis interventions 
• Month XXth: Unlocks third segment of educational material
  

  • Listening skills – How to become better listener
    o Active listening
    o Resist distraction
    o Examples of pour listening skills
  • "Watch and Wait" - active disease monitoring
    o Prejudices
    o Understanding the concept
    o What happens psychologically and mentally with patients during the "window"
    o Proactive observation instead of passive waiting
    o Mindfulness exercise (ACT approach) 
  • Preparing for the Q&A session and explanation of the second video assignment
  • A conversation with an expert 
• Month XXth: Sending second video assignment 
  

  • Second video assignment (creation of video tutorial)
    “Strength in knowledge, hope in action: Facing blood diseases together” 
  • Written analysis of the video assignments