Interaction with newly-diagnosed

Master communication techniques more successfully, aimed at newly diagnosed patients; improve the effectiveness of conveying key messages; empower all participants in the field by offering support to the newly-diagnosed; learn coping mechanisms and strategies to better address and respond to complex inquiries. Improve your patient advocacy skills.

Duration: 6+ hours of e-learning; 5 weeks

Eligibility: This course is intended solely for CML, CLL, Acute Leukemia and MPN patient advocates/representatives.

Official language in this course is ENGLISH, and it requires registration via registration form (no longer available).

ENROLLMENTS IN THIS COURSE ARE NOW  CLOSED! 


Follow the CMLAN, CLLAN,  ALAN and MPNAN communication channels for new announcements.

Course Content

In this course you will learn about:
  • Psychological profile of individuals with AL, CML, CLL, and MPN
  • Understanding the newly-diagnosed patient and family
  • Empathy and Compassion
  • Protocol for the newly-diagnosed patients
  • Burnout Prevention
  • Best practices from experienced patient experts in interacting with the newly-diagnosed
  • Active monitoring -  "watch and wait"
  • Use and power of speech
  • Principles of successful communication
  • Listening skills – How to become a better listener
  • Stress management - breathing techniques
Watch this short course overview
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Duration of each course unit:

  • The first segment of educational material unlocksc   - 2+hours
  • Sending a video assignment - on scheduled date and topic provided
  • The second segment of educational material - 2+hours
  • The third segment of educational material - 2+hours 
  • Sending a video assignment - on scheduled date and topic provided

Duration of entire course:

  • 5 weeks
    6+ hours of audio visual and other educational materials in 3 segments
    2 video assignments
  • Bonus material

Other educational material:

  • 15 Interactive videos
    1 Audio book
    2 Protocols
    3 Presentations
    8 Appendix
    3 Techniques

Course outline and dates

This course consists of 5 units and is spread over 5 weeks. Enrolment is now closed.
  • April 26th: Unlocks first segment of educational materials
    1. Introduction and explanation of the first video assignment
    2. Psychological profile of individuals with AL, CML, CLL, and MPN
    • o a) Map your needs
    • o b) My support system
    • o c) Control circuits 

    3.     Bonus material: Butterfly hug
    4. Use and power of speech
    • o Use of words
    • o Concretization
    • o Conciseness

    5. A conversation with an expert: Interview with Cristian Neves Escaffi
  • May 3rd: Send your first video assignment
    Video task - prepare on the assigned topic and send for analysis
    1. First video assignment theme: "Patient advocate - Why am I here?”
    2. Written analysis of the video assignment
  • May 10th: Unlocks second segment of educational material
    1. Principles of successful communication
    • o Technique of anticipated questions
    • o Main points
    • o Illustrativeness in speech

    2. Burnout Prevention
    • o What is burnout and the difference between stress, anxiety, and burnout syndrome
    • o Burnout prevention (short relaxation exercise)
    • o What to do when burnout occurs
    • o „Secondary traumatization”- what it is and what to do when it occurs 

    3. Bonus material: Progressive muscle relaxation
    4. Bonus material: Imagination - safe place
    5. Listening skills – empathy and compassion (audio book)
    6. Stress management - breathing techniques
    7. Patient Advocates Protocol for newly diagnosed patients (CML, CLL, MPN, AL)
    8. Patient Advocates Protocol for AL patients: Crisis Intervention 
    9. A conversation with an expert: Interview with Jennifer Wilson
  • May 17th: Unlocks third segment of educational material
    1. Listening skills – How to become better listener
    • o Active listening
    • o Resist distraction
    • o Examples of pour listening skills

    2.     "Watch and Wait" - active disease monitoring
    • o Prejudices
    • o Understanding the concept
    • o What happens psychologically and mentally with patients during the "window"
    • o Proactive observation instead of passive waiting

    3.     Bonus: Mindfulness exercise (ACT approach) 
    4. Bonus: Map of values
    5. How to answer questions and explanation of the second video assignment
    6. Understanding the newly-diagnosed patient & family
    7. A conversation with an expert: Interview with Diego Villalon Garcia 
  • May 24th: Send your second video assignment 
    1. Second video task (creation of video tutorial)
    • “Strength in knowledge, hope in action: Facing blood diseases together” 

    2. Written analysis of the video assignments
  • May 31st: Unlocks Certificate of Completion 

Earn a certificate and give us your feedback, and share your ideas on how to improve future programs.

Course Instructors

Speaker/s

Andrea Nenadic

Social worker and psychotherapist, Education "Unalome"

Slobodan Roksandic

Communication specialist
Institute Main Point

Marko Milovanovic

President of the Serbian Patients' Forum
Institute Main Point

Mirjana Milenic

Professor of performance art
University of London, Institute Main Point

Moderator

Andjelka Popadic

Journalist, moderator and PR expert
Intitute Maint Point

Cristian Neves Escaffi

Clinical Health Psychologist, Canada, Professor at University of Chile and Chilean Institute of Technology

Jennifer Wilson

CLLAN, Steering Committee Member; Leukemia & Lymphoma Society (LLS), Senior Information Specialist

Diego Villalon Garcia

Co-founder of Foundacion MAS QUE IDEAS

Alumni reviews

I found the course incredibly valuable and gained several practical tips that will certainly support my advocacy work. I've also recommended it to colleagues who work directly with patients in our programs.
I'm really grateful to you for putting together this course and I found it both useful and enjoyable.

It was the first time I have heard it said that the patient has the RIGHT to receive information from medical professionals, and it's helped me clarify the boundary between education and medical care. It will also help me advocate better for patients. How to speak with confidence and be assertive and how important self-care is.

this course series was truly a wonderful journey
I thought the dynamics were very good
It has been a truly valuable experience for me