Coming Soon: Interaction with newly-diagnosed

Master communication techniques more successfully, aimed at newly diagnosed patients; improve the effectiveness of conveying key messages; empower all participants in the field by offering support to newcomers/newly-diagnosed; learn coping mechanisms and strategies to better address and respond to complex inquiries. Improve your patient advocacy skills.

Duration: 5 weeks;  6+ hours of e-learning

Eligibility: This course is intended solely for CML, CLL, Acute Leukemia and MPN patient advocates/representatives.

NOTE: THIS COURSE IS CURRENTLY UNDER DEVELOPMENT AND WILL BE READY SOON. Changes in the course program presented on this page are possible, please follow the announcements on CMLAN, CLLAN, ALAN and MPNAN networks' communication channels to learn course details and when this course becomes available for enrolment, or revisit this page after a while.

Course Content

In this course you will learn about:
  • Psychological profile of individuals with AL, CML, CLL, and MPN
  • Burnout Prevention
  • Active monitoring -  "watch and wait"
  • Use and power of speech
  • Principles of successful communication
  • Listening skills – How to become a better listener
  • Stress management - breathing techniques

Duration of each course units:

  • Unlocking the first segment of materials - 2+hours
  • Sending first video assignment
  • Unlocking the second segment of materials - 2+ hours
  • Unlocking the third segment of materials - 2+ hours
  • Sending second video assignment

Duration of entire programme:

  • 5 Weeks
  • 6 hours of audio visual and other educational materials in 3 segments

Other educational material:

  • 2 video assignments
  • 1 audio book
    1 Brochure
    1 Protocol

Course outline and dates

This course consists of 5 units and is spread over 5 weeks period. Enrolment will start soon.
  • Month XXth: Unlocks first segment of educational materials
    • Introduction and explanation of the first video assignment
    • Psychological profile of individuals with AL, CML, CLL, and MPN
      o Stages of accepting the diagnosis
      o Impact of the disease on different life areas
      o What we can expect as helpers
      o How to assess the support system
      o Brief intervention for anxiety 
    • Use and power of speech
      o Use of words
      o Concretization
      o Conciseness
    • A conversation with an expert 
  • Month XXth: Sending first video assignment
    Video task - prepare on the assigned topic and send for analysis
    • First video assignment theme: "Patient advocate - Why am I here?”
    • Written analysis of the video assignment
  • Month XXth: Unlocks second segment of educational material
    • Principles of successful communication
      o Technique of anticipated questions
      o Main points
      o Illustrativeness in speech
    • Burnout Prevention
      o What is burnout and the difference between stress, anxiety, and burnout syndrome
      o Burnout prevention (short relaxation exercise)
      o What to do when burnout occurs
      o „Secondary traumatization”- what it is and what to do when it occurs 
    • Listening skills – empathy and compassion (audio book)
    • Stress management - breathing techniques
    • Interaction with families including children of a newly diagnosed patient
    • A conversation with an expert
    • Bonus material
      o Brochure: How to talk to newly diagnosed patients
      What is useful
      What to avoid 
      o Practical protocol for patient advocates: crisis interventions 
  • Month XXth: Unlocks third segment of educational material
    • Listening skills – How to become better listener
      o Active listening
      o Resist distraction
      o Examples of pour listening skills
    • "Watch and Wait" - active disease monitoring
      o Prejudices
      o Understanding the concept
      o What happens psychologically and mentally with patients during the "window"
      o Proactive observation instead of passive waiting
      o Mindfulness exercise (ACT approach) 
    • Preparing for the Q&A session and explanation of the second video assignment
    • A conversation with an expert 
  • Month XXth: Sending second video assignment 
    • Second video assignment (creation of video tutorial)
      “Strength in knowledge, hope in action: Facing blood diseases together”
       
    • Written analysis of the video assignments
Earn a certificate and give us your feedback, and share your ideas on how to improve future programs.

Course Instructors

Speaker/s

Andrea Nenadic

Social worker and psychotherapist, Education "Unalome"

Slobodan Roksandic

Communication specialist
Institute Main Point

Marko Milovanovic

President of the Serbian Patients' Forum
Institute Main Point

Dejan Zivkovic

Psychologist
Institute Main Point

Mirjana Milenic

Professor of performance art
University of London, Institute Main Point

Moderator

Andjelka Popadic

Journalist, moderator and PR expert
Intitute Maint Point

Cristian Neves Escaffi

Clinical Health Psychologist, Canada, Professor at University of Chile and Chilean Institute of Technology

Jennifer Wilson

CLLAN, Steering Committee Member; Leukemia & Lymphoma Society (LLS), Senior Information Specialist

Diego Villalon Garcia

Co-founder of Foundacion MAS QUE IDEAS