Pediatric CML

How CML in children impacts patients and caregivers life, how we can better cope with pediatric CML, what can we still do to meet unmet needs and what are the best practices, learn more by enrolling in CMLAN Pediatric CML course. Improve your patient advocacy skills!

Duration: 4 weeks and 7 + hours of e-learning; and  2+ hours bonus material

Eligibility: This course is intended for CML patient advocates/representatives, caregivers and young CML patients with pediatric onset of CML.

Official language in this course is ENGLISH and it's available in SPANISH. 
This course requires registration prior enrollment via this REGISTRATION FORM. (registration form is no longer available)

ENROLLMENT IN THIS COURSE IS NOW CLOSED!
Stay tuned with the CMLAN announcements for future enrolments in this course. 

Course Content

In this course you will learn and gain a better understanding on:
  • Diagnosis of CML in children
  • CML treatment options
  • CML clinical guidelines for children and TFR
  • Quality of life living with pediatric CML
  • Advocacy journeys and challenges
  • Strategies for effective advocacy in pediatric cancers
  • Tools, techniques and best practices for managing mental health while living with CML in childhood, adolescence and for family members
  • Strategies to empower child to make informed decisions
Watch this short course overview
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How much time each week you will need to commit to this course?

  • Module I:  1st week - 45 minutes
  • Module II:  2nd week - 2 hours
  • Module III :  3rd week - 2 hours, 30 minutes
  • Module III:   4th week - 2 + hours
  • Bonus material - 2+hours

Duration of entire course program:

  • 4 Weeks
  • 7+ hours of audio visual
  • 2+ hours of browsing useful resources 
  • 3 Modules

Course outline and dates

This course consists of 3 Modules and is spread over 4 weeks period. Enrollment is just starting.
  • Week 1 - Unlocks on March 29th: MODULE I - Understanding CML in children and adolescents
    • Session: The diagnosis of CML in children & adolescents, Treatment options, Treatment Free-Remission, and Clinical Guidelines in pediatric CML -  Prof. Dr Frederic Millot/Pediatric Hematologist
    • Q&A: International collaborations and experts' efforts
  • Week 2 - Unlocks on April 5th: MODULE II  - Understanding patient advocacy challenges, pathways, and best practices in pediatric CML
    • My child’s story is NOT my story - Interview with Rod Padua/Engineer, Caregiver and Patient Advocate
    • What can we do to meet unmet needs in pediatric CML? - Interview with Cornelia Garnitz/ Dr. of Dentist Surgery, Caregiver and Patient Advocate 
    • Childhood cancer landscape & Regulations - Part 1  - Conversation with Carmen Auste /Social Psychologist, Caregiver and Patient Advocate
    • Childhood cancer landscape & Regulations - Part 2 - Conversation with Carmen Auste /Social psychologist, Caregiver and Patient Advocate
  • Week 3 - Unlocks on April 12th: MODULE III / First part - Understanding the psychological burden and challenges of CML in children & adolescents; tools to cope with the disease
    • How CML impacts patients life (Mental, psychological, social, sexuality, identity) - Andrea Nenadić/Social worker and psychotherapist 
    • Real life challenges with CML through a caregiver lens - Interview with Rod Padua/Engineer, Caregiver and Patient Advocate 
    • The Role of Caregivers - Cristian Neves Escaffi/Clinical Health Psychologist
    • Children with CML: What caregivers can expect? - Andrea Nenadić/Social worker and psychotherapist
    • Health Decision-Making in Pediatric CML - Cristian Neves Escaffi/Clinical Health Psychologist
  • Week 4 - Unlocks on April 19th: MODULE III / Second part - Understanding the psychological burden and challenges of CML in children & adolescents; tools to cope with the disease
    • Life with CML - Interview with Yunus Borowczak/Patient and Young Patient Advocate
    • Resources and support system - educational and practical for patients and patient advocates - Andrea Nenadić/Social worker and psychotherapist
    •  Emotions and how to manage them better: "Sky" technique - Andrea Nenadić/Social worker and psychotherapist
    • Reshaping core beliefs - Andrea Nenadić/Social worker and psychotherapist
    • "Mindfulness" technique - Andrea Nenadić/Social worker and psychotherapist
    • Bonus: Additional resources and links
    • Infographics – "How to explain CML to a child" 
  • Week 4 - Unlocks on April 20th or after the course completion: Certificate of Completion 
Earn a certificate and give us your feedback. Share your ideas on how to improve the future programs.
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Speakers: Experts

Speakers: Patient Advocates

Speakers: Experts

Frédéric Millot, MD, Professor"

INSERM Clinical Investigation Center, Poitiers University, Poitiers, France; Chairman of the CML committee of the I-BFM Study Group; Coordinator of the International Registry of Childhood CML; Service de pédiatrie 

Cristian Neves Escaffi

Clinical Health Psychologist, Cristian Neves Escaffi, Canada, Professor at University of Chile and Chilean Institute of Technology

Andrea Nenadić

Social worker and psychotherapist, Education "Unalome"

Speakers: Patient Advocates

Rod Padua

Engineer, Caregiver and Patient Advocate - Chair of the CML Advocates Network and President of Touched by Max, Philippines

Cornelia Garnitz

Dr. of Denist Surgery, Caregiver and Patient Advocate Leukämie-Online / LeukaNET, Germany

Yunus Borowczak

Patient and Young Patient Advocate, Germany

Carmen Auste

Vice president of Cancer Coalition Phillippines; CEO, Cancer Warriours Foundation; Working group member of the WHO global childhood cancer initiative; Union for International Cancer Control (UICC), Phillipines,

Alumni reviews 

Excellent capacity on CML in Pediatric, Adolescents and Young Patients. Thanks to LePAF and Blood Cancer Patient Advocacy Academy for this extraordinary training. Thanks to those who shared experience and advice to influence the best attention for this population that in many countries do not have integral and timely coverage.
The information shared was clear, accessible, and extremely useful. I consider it an excellent training experience. One of the highlights of the course was the quality of the material and the way the topics were addressed, which facilitates their understanding and application in daily work with families.


The course was excellent — well-structured, engaging, and very informative. I really enjoyed the experience, and I’m definitely looking forward to taking more courses with you in the future. Congratulate to entire team.



I highly recommend this course and deeply appreciate the effort you've made to provide useful tools to those of us who work for and on behalf of patients.

Supporters

Funding for this course was obtained through a public, competitive and independent medical grant from Pfizer.  The supporter had no role in the development of this program.