Pediatric CML

How CML in children impacts patients and caregivers life, how we can better cope with pediatric CML, what can we still do to meet unmet needs and what are the best practices, learn more by enrolling in CMLAN Pediatric CML course. Improve your patient advocacy skills!

Duration: 4 weeks and 7 + hours of e-learning; and  2+ hours bonus material

Eligibility: This course is intended solely for CML patient advocates/representatives, caregivers and young CML patients with pediatric onset of CML.

Official language in this course is ENGLISH and it's available in SPANISH. This course requires registration prior enrollment via this REGISTRATION FORM. (soon will be available)

ENROLLMENT IN THIS COURSE WILL SOON BE OPENED! Follow the announcements when this course becomes available for new enrolments

Course Content

In this course you will learn and gain a better understanding on:
  • Diagnosis of CML in children
  • CML treatment options
  • CML clinical guidelines for children and TFR
  • Quality of life living with pediatric CML
  • Advocacy journeys and challenges
  • Strategies for effective advocacy in pediatric cancers
  • Tools, techniques and best practices for managing mental health while living with CML in childhood, adolescence and for family members
  • Strategies to empower child to make informed decisions

How much time each week you will need to commit to this course?

  • Module I:  1st week - 1 hour, 30 minutes
  • Module II:  2nd week - 2 hours
  • Module III :  3rd week - 2 hours, 30 minutes
  • Module III:   4th week - 2 + hours
  • Bonus material - 2+hours

Duration of entire program:

  • 4 Weeks
  • 7+ hours of audio visual and other educational materials
  • 3 Modules

Course outline and dates

This course consists of 3 Modules and is spread over 4 weeks period. Enrollment is just starting.
  • Unlocks on Month XXth: MODULE I - Understanding CML in children and adolescents
    • Understanding the diagnosis of CML in children & adolescents 
    •  Understanding CML treatment options 
    • Stem cell Transplantation (SCT) for pediatric CML 
    • Clinical guidelines for children and understanding Treatment Free Remission
    • Introduction to the medication summaries on TKIs prepared for parents and children 
  • Unlocks on Month XXth: MODULE II  - Understanding patient advocacy challenges, pathways, and best practices in pediatric CML
    • My child’s story is NOT my story - Interview with Rod Padua/Engineer, Caregiver and Patient Advocate
    • What can we do to meet unmet needs in pediatric CML? - Interview with Cornelia Garnitz/ Dr. of Dentist Surgery, Caregiver and Patient Advocate 
    • Childhood cancer landscape & Regulations - Part 1  - Conversation with Carmen Auste /Social Psychologist, Caregiver and Patient Advocate
    • Childhood cancer landscape & Regulations - Part 2 - Conversation with Carmen Auste /Social psychologist, Caregiver and Patient Advocate
  • Unlock on Month XXth: MODULE III / First part - Understanding the psychological burden and challenges of CML in children & adolescents; tools to cope with the disease
    • How CML impacts on patients life (Mental, psychological, social, sexuality, identity) - Andrea Nenadić/Social worker and psychotherapist 
    • Real life challenges with CML through a caregiver lens - Interview with Rod Padua/Engineer, Caregiver and Patient Advocate 
    • The Role of Caregivers - Cristian Neves Escaffi/Clinical Health Psychologist
    • Children with CML : What caregivers can expect? - Andrea Nenadić/Social worker and psychotherapist
    • Health Decision-Making in Pediatric CML - Cristian Neves Escaffi/Clinical Health Psychologist
  • Unlocks on Month XXth: MODULE III / Second part - Understanding the psychological burden and challenges of CML in children & adolescents; tools to cope with the disease
    • Life with CML - Interview with Yunus Borowczak/Patient and Young Patient Advocate
    • Resources and support system - educational and practical for patients and patient advocates - Andrea Nenadić/Social worker and psychotherapist
    •  Emotions and how to manage them better: "Sky" technique - Andrea Nenadić/Social worker and psychotherapist
    • Reshaping core beliefs - Andrea Nenadić/Social worker and psychotherapist
    • "Mindfulness" technique - Andrea Nenadić/Social worker and psychotherapist
    • Bonus: Additional resources and links
    • Infographics – "How to explain CML to a child" 
  • Unlocks on Month XXth: Certificate of Completion 
Earn a certificate and give us your feedback. Share your ideas on how to improve the future programs.
Secure your spot and save the dates!

Speakers: Experts

Speakers: Patient Advocates

Speakers: Experts

Prof. Meinlof Suttorp, MD

Retired - Medical Faculty, Pediatric Hematology and Oncology, Technical University Dresden, Dresden, Germany

Prof. Markus Metzler, MD

Pediatric Oncology and Hematology, Department of Pediatrics and Adolescent Medicine, University Hospital Erlangen, Erlangen, Germany

Phyllis Lensker

Pharmacist, University Hospital Erlangen, Erlangen, Germany

Cristian Neves Escaffi

Clinical Health Psychologist, Cristian Neves Escaffi, Canada, Professor at University of Chile and Chilean Institute of Technology

Andrea Nenadić

Social worker and psychotherapist, Education "Unalome"

Speakers: Patient Advocates

Rod Padua

Engineer, Caregiver and Patient Advocate - Chair of the CML Advocates Network and President of Touched by Max, Philippines

Cornelia Garnitz

Dr. of Denist Surgery, Caregiver and Patient Advocate Leukämie-Online / LeukaNET, Germany

Yunus Borowczak

Patient and Young Patient Advocate, Germany

Carmen Auste

Vice president of Cancer Coalition Phillippines; CEO, Cancer Warriours Foundation; Working group member of the WHO global childhood cancer initiative; Union for International Cancer Control (UICC), Phillipines,

Supporters

Funding for this course was obtained from Pfizer. Supporter had no role in the development of this program.

Alumni reviews 

It is very, very useful and it is really an eye opener for me! I’ve learned so many new things and I have come to realise that – it is more comfortable for me to speak in front of a live audience, than to do a recording. So, that’s a new learning for me, because without this course I never realised that’s my case.
Role playing. I really felt how our hematologist felt. This exercise will surely help me with my future conversation with our hematologist. 
This is the first time I am receiving such a training. Being evaluated in terms of seeing my own level motivated me a lot. As of now, I can say that it has completely met my expectations. Thank you to everyone who contributed.